I totally stole this idea, I just love it.
June
July
February
March
May
Thursday, May 31, 2012
Wednesday, May 30, 2012
And then there was the IEP....
the Individualized Educational Plan. Ugh. We had Zach's meeting on the 18th. Zach was evaluated by the school PT, OT, ST, Adaptive PE & the nurse. Overall doing well, he doesn't qualify for special education services at this time. That's great.
However....the school PT & his private PT are recommending continued PT as he still has a lack of safety awareness & the quality of his movements are still not normal. He can't get PT through the school at this time, so I need to start fighting with the insurance company again. Maybe with the dyspraxia diagnosis it will be easier than it was a year ago.
I am amazed at how much better Zach is now than he was a year ago. A year ago my insurance company denied him PT. Thankfully Regional Center picked it up. I can't even imagine where he would be now if he hadn't had weekly PT since August.
My plan for now is to keep him in swimming lessons & start karate. Everyone is really recommending gymnastics or karate as dyspraxia is helped by doing lots & lots & lots of physical activity. We also really need to find a place to live that has easy access to the outside & a nearby play area. I'm not sure how I'm going to manage that in this high cost of living area. Ugh, I have a lot to figure out.
For now, Zach has a balance bike that he can now balance enough to ride outside, that should help. He loves it & can manage 1/4 of a block right now.
I also need to say that I just can't STAND it when people (the NP, the doctor's) saw "Well, he is doing fine cognitively. If you have to choose between being ok cognitively or physically which would you choose?". You know what.....I. don't. want. to. choose! Yes, yes, I do know how lucky that I am that Zach is doing well cognitively & physically he only has mild issues (it is just luck, that's all that it is). I know. Then, I feel guilty that I want him to be totally fine. I should appreciate what we have (& I do, I really do).
It's just tiring. It just really is at times.
However....the school PT & his private PT are recommending continued PT as he still has a lack of safety awareness & the quality of his movements are still not normal. He can't get PT through the school at this time, so I need to start fighting with the insurance company again. Maybe with the dyspraxia diagnosis it will be easier than it was a year ago.
I am amazed at how much better Zach is now than he was a year ago. A year ago my insurance company denied him PT. Thankfully Regional Center picked it up. I can't even imagine where he would be now if he hadn't had weekly PT since August.
My plan for now is to keep him in swimming lessons & start karate. Everyone is really recommending gymnastics or karate as dyspraxia is helped by doing lots & lots & lots of physical activity. We also really need to find a place to live that has easy access to the outside & a nearby play area. I'm not sure how I'm going to manage that in this high cost of living area. Ugh, I have a lot to figure out.
For now, Zach has a balance bike that he can now balance enough to ride outside, that should help. He loves it & can manage 1/4 of a block right now.
I also need to say that I just can't STAND it when people (the NP, the doctor's) saw "Well, he is doing fine cognitively. If you have to choose between being ok cognitively or physically which would you choose?". You know what.....I. don't. want. to. choose! Yes, yes, I do know how lucky that I am that Zach is doing well cognitively & physically he only has mild issues (it is just luck, that's all that it is). I know. Then, I feel guilty that I want him to be totally fine. I should appreciate what we have (& I do, I really do).
It's just tiring. It just really is at times.
Wednesday, May 9, 2012
4th and final
Zach (& I) had his last NICU follow up appointment this afternoon. The most important part? We graduated! Seriously, we graduated.......wow.
We had another evaluation two weeks ago, so the results that I am posting are from both evaluations.
Zach is currently 35 months old (actual, although we are not adjusting age anymore....I'll do it one last time. He is 32 months adjusted).
Cognitively: Zach is testing at 37-39 months.
Language: Zach is testing at 42 months at least, but the test didn't go any higher.
Gross motor: Zach is testing at 31 months, has minor balance problems & his running doesn't look quite
"normal", she actually described it as "awkward" (but he is much better than he was even
3 months ago. It is like a light bulb went off in his head). He was able to jump forward
over 4 inches today.
Fine Motor: he tested at 34 months.
I was assured again that his "obsession" with cars is normal as long it is not exclusive to other activities. The NP said that neuro was appropriate in bringing up Autism Spectrum Disorder as it's good to not miss kids who are in the "gray" area, but Zach is not on "The Spectrum".
Now for stats:
Weight: 26 lbs (I thought that it was higher, sigh) 3-10%. Woot, woot! We are above the line!!!!!
Length: 36 inches, 10-25% Holy cow! (He grew 1.5 inches in 2 months!)
Overall, a great clinic appointment. I am feeling so much better about leaving Developmental Clinic & Early Intervention behind us now that Zach's balance is so much better & he doesn't walk into walls anymore : )
Zach & I got to stop over at the hospital & enjoy the Nurse's Week Ice Cream social. He loved it & I got to show him off to a few of my co-workers (I now work at the La Jolla campus, NICU is at the Hillcrest campus).
We had another evaluation two weeks ago, so the results that I am posting are from both evaluations.
Zach is currently 35 months old (actual, although we are not adjusting age anymore....I'll do it one last time. He is 32 months adjusted).
Cognitively: Zach is testing at 37-39 months.
Language: Zach is testing at 42 months at least, but the test didn't go any higher.
Gross motor: Zach is testing at 31 months, has minor balance problems & his running doesn't look quite
"normal", she actually described it as "awkward" (but he is much better than he was even
3 months ago. It is like a light bulb went off in his head). He was able to jump forward
over 4 inches today.
I was assured again that his "obsession" with cars is normal as long it is not exclusive to other activities. The NP said that neuro was appropriate in bringing up Autism Spectrum Disorder as it's good to not miss kids who are in the "gray" area, but Zach is not on "The Spectrum".
Now for stats:
Weight: 26 lbs (I thought that it was higher, sigh) 3-10%. Woot, woot! We are above the line!!!!!
Length: 36 inches, 10-25% Holy cow! (He grew 1.5 inches in 2 months!)
Overall, a great clinic appointment. I am feeling so much better about leaving Developmental Clinic & Early Intervention behind us now that Zach's balance is so much better & he doesn't walk into walls anymore : )
Zach & I got to stop over at the hospital & enjoy the Nurse's Week Ice Cream social. He loved it & I got to show him off to a few of my co-workers (I now work at the La Jolla campus, NICU is at the Hillcrest campus).
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